Note: The following story was written by Ashley Piturro Hospice MSW. Thank you, Ashley for sharing your generous heart with us.
A few years ago I cared for a patient in a skilled nursing
facility who had been receiving dialysis. His name was John and he came to us
from the hospital after the doctor told him that they were going to have to
amputate his left leg.
John had no local family; his only daughter lived in St.
Louis which was about 1500 miles away. John had a great sense of humor and he
had lived a good life.
My first meeting with John was a poignant one. He decided
that he did not want to continue the dialysis, nor did he want to have his foot
amputated. He told me that he was tired and he cried in front of me. I
discussed with him the pros and cons of continuing dialysis or stopping
dialysis. I also discussed hospice with him but he was not ready.
John decided to stop
going to dialysis on a Friday and then he died the very next day. What made it
so hard, was when I talked to him about hospice, he replied, “It is not like I
am going to die tomorrow!” But, he did. Somehow, I felt guilty that he died the
next day.
The only comfort I felt was when I arrived at work the next
day, the nurse told me about how she had held the phone up to his ear, and while
he slipped away into unconsciousness, his daughter said her goodbyes from 1500 miles away in St. Louis. The nurse said he went peacefully after she hung
up the phone.
I spoke to John’s daughter after he died and she asked if I
could mail one of his favorite blankets to her so that she had something to
hold on to. I did not want the blanket to get lost or ruined, so instead of
sending John’s blanket to our facility laundry, I took it home and washed it at
my place. I attached a sympathy card and mailed the package to his daughter the
next day.
A couple of days later, I received a call from John’s
daughter in St. Louis. She was so grateful for all the staff had done for her
dad and said it meant so much to her to have a piece of her dad with her.
That was one of the best days of my life. I truly felt like
I had made a difference.
Special thanks to Ashley Piturro Hospice MSW for sharing her deeply moving experience, which is a
remarkable example of Radical Loving Care.
There can be no denying that life’s circumstances are often
beyond our control and incongruent with our ideal of how life shall be. Suffering is a part of
living and no matter how imperfect, what never fails how Beauty
manifests unexpectedly to redeem us from despair.
October 12 is World Hospice
and Palliative Care Day. This reflection is dedicated to all caregivers who
show up for us in times of uncertainty and anguished vulnerability, offering comfort
in a warm blanket of love.
~ Liz Sorensen Wessel
Photo, Laura’s
Quilt by ~liz

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