Note: The following story was written by Ashley Piturro Hospice MSW. Thank you, Ashley for sharing your generous heart with us.

A few years ago I cared for a patient in a skilled nursing
facility who had been receiving dialysis. His name was John and he came to us
from the hospital after the doctor told him that they were going to have to
amputate his left leg.

John had no local family; his only daughter lived in St.
Louis which was about 1500 miles away. John had a great sense of humor and he
had lived a good life.

My first meeting with John was a poignant one. He decided
that he did not want to continue the dialysis, nor did he want to have his foot
amputated. He told me that he was tired and he cried in front of me. I
discussed with him the pros and cons of continuing dialysis or stopping
dialysis. I also discussed hospice with him but he was not ready.

 John decided to stop
going to dialysis on a Friday and then he died the very next day. What made it
so hard, was when I talked to him about hospice, he replied, “It is not like I
am going to die tomorrow!” But, he did. Somehow, I felt guilty that he died the
next day.

The only comfort I felt was when I arrived at work the next
day, the nurse told me about how she had held the phone up to his ear, and while
he slipped away into unconsciousness, his daughter said her goodbyes
 from 1500 miles away in St. Louis. The nurse said he went peacefully after she hung
up the phone.


Quilt 6 15 2013I spoke to John’s daughter after he died and she asked if I
could mail one of his favorite blankets to her so that she had something to
hold on to. I did not want the blanket to get lost or ruined, so instead of
sending John’s blanket to our facility laundry, I took it home and washed it at
my place. I attached a sympathy card and mailed the package to his daughter the
next day.

A couple of days later, I received a call from John’s
daughter in St. Louis. She was so grateful for all the staff had done for her
dad and said it meant so much to her to have a piece of her dad with her.

That was one of the best days of my life. I truly felt like
I had made a difference.

Special thanks to Ashley Piturro Hospice MSW for sharing her deeply moving experience, which is a
remarkable example of Radical Loving Care.

There can be no denying that life’s circumstances are often
beyond our control and incongruent with our ideal of how life shall be. Suffering is a part of
living and no matter how imperfect, what never fails  how Beauty
manifests unexpectedly to redeem us from  despair.

October 12 is World Hospice
and Palliative Care Day
. This reflection is dedicated to all caregivers who
show up for us in times of uncertainty and anguished vulnerability, offering comfort
in a warm blanket of love.

~ Liz Sorensen Wessel

Photo, Laura’s
Quilt by  ~liz

9 responses to “Days 284-285 “Something To Hold On To””

  1. Margot Avatar

    I love this story, because it shows that when we go the extra mile for someone, it not only helps them but it helps us to feel complete with that patient or family member. Too often I don’t go there, making that extra phone call or making sure things are followed up. I often feel overwhelmed, and unable to take those extra steps. But the thing is, when I just stop, and take the time to be human, to treat another the way I would hope to be treated, that sense of overwhelm leaves me and is replaced by a feeling of calm and grace.
    My neighbor died unexpectedly a month ago, at only 31 years old. Her mother who lived with her, was of course shocked and grief stricken. I have been home nursing a sore foot, and she took advantage of that, coming over or calling me two or three times a day, desperate for company. At first I was put off by this – “Geeze I am home with an injury myself – plus I do this for a living – I need a break from Hospice! Must I deal with grief right here at home too?” Then, I melted – I realized that this woman, tho not a close friend, was a friend in need – and that what I had to offer her was beneficial to her. Once my heart melted, and I was able to really be present with her, my sense of overwhelm vanished like a puff of smoke. Being in Service to others is what my Life’s Purpose is – so any time I have the chance to fill that purpose – I feel stronger and healthier. My neighbor is doing better now, we are still in close connection – but she is finding her way in her new landscape pretty well. Death puts us into a new life, and different landscape – those of us who stand guard at the gate are privileged to be there.

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  2. Erie Chapman Foundation Avatar

    Thanks so much for sharing this story from Ashley. This is the can of caregiver tale that enhances the expression of love in this world. Thank you, Ashley, for sharing your heart with us.

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  3. ~liz Wessel Avatar

    On route to go visit my mom, I sat in an airport terminal late at night, and read your essay. Tears streamed down my face as I typed your Journal essay. I felt embarrassed by my flood of emotion in a such a public place.
    Life ‘s essence is crystal clear and never more poignant when we are face to face with death. Suddenly, it is as though we understand everything about what really matters. As caregivers we receive this gift of true awareness when we are in the presence of a person dealing with a life threatening illness. John’s choice to stop treatment was a courageous one. In the sacred intimacy of that moment, you were present to bear witness to his grief.
    I appreciate your candidness about your feelings of guilt. Although, not rational these emotions are challenging. Family members often grapple with similar intense emotions that can complicate grief. Thoughts swirling endlessly…if only I said this, did not say that, did this or did not to that. We can relive and agonize over the course of a loved one’s illness. I guess this is part of the grieving process and it is important to express all our emotions within the safety of Love.
    I was touched by your act of love; that you took that blanket home to safeguard your patient’s sacred trust. Although, I wished his daughter could have been there to hold her father’s hand as he took his last breast, a miracle unfolded when the nurse held the phone up to his ear for that last loving exchange to occur.
    Sending the blanket to his daughter was an affirmation of life and as healing for you as his daughter. As Henri Nouwen attests, we all are wounded healers. As we accompany our patients and family members at end of life we heal and are healed in the process. What a precious gift.

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  4. Cheri Cancelliere Avatar

    What a beautiful story about the simplicity of love. Sometimes great love is expressed through a whispered last phone call, a held hand, a card, caring enough to take home a blanket to lovingly wash and send, being open to a neighbor’s needs and forgetting our own, taking the time to truly listen, or as Charlie Brown would say, sometimes “Happiness is a warm puppy.”
    Liz, May your time with your mother be a treasure to hold in your heart.

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  5. ~liz Wessel Avatar

    Thank you for sharing these marvelous insights, Margot that speak to the fragility of our humanness and our ambivalence. Yet, somehow when our “heart melts” we are able to show up and be there for one another. I love your heart, Margot!

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  6. Bobbye Terry Avatar
    Bobbye Terry

    Ashley,
    You never know when what you do will touch another person’s soul. You did that for more than one person. You did it for me. You brought back a detail of my cousin’s death from a Glioblastoma.
    She was more like my sister and we were very close. Pam was in Florida and her sister called and told me she was dying and would be gone any time, but probably in the next few days. I made arrangements to go see her and then called and asked to speak to Pam. Carol, her sister, said she didn’t know anyone but still put the phone to her ear. Pam knew me immediately and said, “Honey, how are you? I love you so.” We talked for a few brief minutes and I told her I was coming. She died a few hours later.
    Life is so fragile and precious, and people like you make their last moments so worthwhile.
    May God bless your continued mission.

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  7. sbeng Avatar
    sbeng

    Ashley: thank you for your experience with this patient and his daughter. In every sense you are the great communicator for the patient and his family through your thoughtful deeds and actions before and after the patient transitioned from here to eternity. What a comfort to him, his daughter and you when every thing fell into place and all turned out so well. To all the Hospice and Palliative Care Team may you all be wrapped in the warm Blanket of Love as you continue to provide Radical Loving Care to the patients and their families. Hospice Care can be challenging at times but it is rewarding to our spirit, soul and body. Patient’s family members often express their gratefulness for all you have done for them. Kudos to all of you from one who has been a Hospice Nurse and Hospice Volunteer.

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  8. Woody wessel Avatar
    Woody wessel

    A Beautiful but sad story. I admire a man like John, who knew when it was his time to go and went after saying his goodbyes in his own time.

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